Friday, June 15, 2012

Where I'm Headed



This angel is from my Uncle Jody's garden, and now this angel boy sits on my front door step, and greets us as we come, and blesses us as we go.  I miss you Duncle, but still feel your presence, especially when I feel a little sorry for myself and I can hear you say "Get a grip Dearie!"

This is Marie from Relay.. I have been reading your blog since we met and I can't tell you how much your story has helped me. Thank you for giving me so much hope. My radiation is going well. The burns are just starting to happen. Just taking it one day at a time. 

Marie

Hello Marie.  Hello Sister.  It's always grand when another Sister is placed on my path, then she goes back into the archives of my blog, and retraces my journey while she is making her own.  This helps me, to help you, and I have been so blessed by my new sorority, my tribe of The Sistahs of the Cancerous Breasts.  I can't emphasize enough the importance of finding your tribe, there is nothing like being part of a community who has been there done that, and gets what you're going through.  It's so important.  Hi Cara, I'm reminding you Girl to find your peeps, it will help you tremendously.

Thank you one and all for all the love and concern for Cara.  It was a great surprise when I went to this year's Cancer Survivors Day celebration and had several people come up to me and ask about Cara!  That was wonderful to know that a year later some of the people I met when I was the keynote speaker last year were not only still following my blog, but without our knowing it, had been praying for Cara.  Thank you so much.

Cara is getting through her leukemia treatment like a real trooper, she's had some scary twists and turns as a result of her body trying to cope with the barrage of treatment, including several hospital stays for a fever, or bad allergic reaction to platelets, or low ANC numbers, but she's done her best to handle all of it as best she can.  She and her family are getting through it, one day at a time.


Cara posted this self portrait from the ER where she was quarantined, with a sign on the door that read "Door to remain closed, otherwise alarm will sound."  Yikes.


I had to laugh, cause that photo sure looked familiar - yup, this is my self portrait in the chemo chair.  The door was open, but I couldn't escape, all hooked up to da good shit in the green vinyl chemo chair!  Oh my goodness, I just gave myself a SHIVER!

Continued support and prayers for our Cara girl are still much needed, and if you'd like to help out towards the enormous expense of her care and treatment, you can visit this link to Cara's Cure.

During Cara's recent hospital stay, she was happy to see her little friend, Sierra, another leukemia patient.  Sierra is a real doll, with a happy smile and hug for everyone.  She was notorious for running the halls of the pediatric oncology wing at UCSF.  It got really exciting when she figured out how to push the handicap button and open the automatic doors leading out into the rest of the hospital.  And there she goes!  Somebody catch that kid!  Stat!  Sierra also learned how to keep pushing the hand sanitizer pump till it was a goopy pile, and then would finger paint in it.  Cara said when Sierra would plop on the floor, that was her way of saying "OK Mama, come pick me up, I'm done."


Sierra and Cara, at UCSF
  

Cara is doing her best but it is a hard hard road, and from what I've seen, it's far worse than breast cancer treatment.  I told Cara that I was once the reigning Queen of the Glitch, and if I had one more doctor say to me "Gee, we've never had that happen before" I was going to go cancer girl crazy on somebody.  Cara has taken over my position, and despite some very rough days, emotionally and physically, the new Queen is a real trooper and still manages to keep her sense of humor.

Make no mistake about it - 
  

I love you Cara.  I'm really proud of you.  Keep going.

I've been doing a lot of thinking about the direction of my blog, and if I even had a direction I still wanted to go in.

Then it occurred to me, Part A of my blog was everything associated with diagnosis and treatment.

I have now figured out what the Part B is.

It's called Survivorship.

That's what I'm going to be talking about in the coming months, and leading up to my try at reconstruction next Winter, for the millionth time.

When you go through cancer treatment, there is a huge team of people taking care of you and helping you through treatment.

Once you're done?
You are pretty much on your own to navigate through survivorship. 
It may be over for all of them, I completed treatment, but it's not over for me.

I am living in a body I don't recognize.
I have several issues that are collateral damage from cancer treatment, included being thrown head first through the windshield called MENOPAUSE.

I had so much amazing awesome incredible help and guidance and care through cancer treatment.

I need a new team to help me navigate this one.

Survivorship.

I'm grateful to be alive, and two years out from diagnosis,
but I'm having a hell of a time finding my new normal.

A hell of a time.

Welcome to life after cancer treatment.


2 comments:

Anonymous said...

Just what the Fan Club needs.... a guide through this "suvivorship". Like you, I am two years out and counting. Trying to live fearlessly. Is there a possible how-to guide for this?
Thanks for your wise words & discovering your direction. One thing for sure, you listen to the Creator as He gudies you. Wow! Faith & Hope

writergirldreams said...

Hello Sister, congratulations on your two years out, nope Hon there is no how-to guide, but I'm hoping that opening this up for dialogue will bring about some change so that the Part A to diagnosis and treatment always has a Part C, navigating survivorship! We need more focus on this, learning how to live after cancer. Thank you F&H for being such a faithful fan and reader. Thank you Sister. love Deb, writergirl

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