Thursday, April 11, 2019

Ten Things your Friend with MBC Wants You To Know

Well hello Dear Reader.  I thought I'd share this great article with you that I so relate to!  It's not easy to educate people about metastatic breast cancer  (MBC) while I'm trying to get up to speed on it myself! Quite a bit has changed since I was first diagnosed with breast cancer in 2010.  I had no idea that a significant percentage of those diagnosed with early stage breast cancer go on to have a recurrence, and in my particular type of breast cancer (lobular carcinoma) it can often return years later! 😨 I'm grateful for the new pill forms of chemo I'm on right now, like Ibrance, that is helping people like me live longer without progression of the disease.

I appreciate all the love, concern, support and prayers I've received since finding out my breast cancer returned.  You may find this article helpful in your understanding and answering some of your basic questions about what it's like for me living with MBC.

Just click on the link!

Ten Things Your Friend with MBC wants you to Know

I do gets lots of comments like "You look great...' which really means "You don't look sick...'

Or lots of questions like:

"When is your next oncology appointment?
'Is your treatment working?'
'What's your prognosis?"
'When will you be done with chemo?'

This article will help you better understand that MBC is not considered curable, but treatable.  I will always be in chemo or treatment until the next best thing comes along or I'm dead.  The median lifespan of MBC is about three years after diagnosis, but there are many wild cards and exceptions! Such as where it's at, does it respond to treatment, does it continue to spread?  In my case because it's in my bones, I'm especially at risk for fractures and/or spinal compression.  I'll soon be starting on an osteoporosis medicine that's found to be helpful in strengthening bones in MBC patients like me.

Click here for Prolia commercial

I'm hopeful I'll continue to respond to the meds I'm on, and if or when I stop responding, there will be new and exciting options for me. I'm doing my best living with MBC but have been astounded to discover it is the least funded area of breast cancer research and the statistics are sobering.

An estimated 155,000-plus women (and men) in the U.S. currently live with “mets,” or metastatic breast cancer. This type of cancer, also called stage 4 breast cancer, means the cancer has metastasized, or traveled, through the bloodstream to create tumors in the liver, lungs, brain, bones and/or other parts of the body. Between 20 and 30 percent of women with early stage breast cancer go on to develop metastatic disease. While treatable, metastatic breast cancer (MBC) cannot be cured. The five-year survival rate for stage 4 breast cancer is 22 percent; median survival is three years. Annually, the disease takes 40,000 lives. 

MBC is widely misunderstood

Thanks for listening and supporting and your willingness to hold my hand through this, whether it's in person, or in your thoughts, prayers and messages.

It means a lot.




Toni said...

I sure getcha girl! It's a sucky club to belong to! I'm 3 years and 4 months in and doing pretty well. I saw a really crappy oncologist early on who told me to do what I wanted, because the odds were in 3 years, I'd be dead! (I only saw her once, and went straight to the head of oncology and threw her little butt under the bus! No way an oncologist should be so negative! We all know that attitude is half the battle!!)

All we can do is fight as hard as we can, and appreciate every single day, and every single person we come in contact with. I have definitely learned to appreciate the smallest of things. Sometimes, cancer is a gift too! Love ya!!

writergirldreams said...

Blessings, strength and healing to you Sister! Yes every day every breath a gift.

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